Tag: Luke Dalien

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Special Education - Parents View

Parent View – Duchenne Muscular Dystrophy

My son is four years old and has Duchenne Muscular Dystrophy. For those that are unaware, Duchenne Muscular Dystrophy (DMD) is an incurable, degenerative muscle disease. Basically, over time people

February 5, 2019 2 Comments

Special Education - Parents View

The First Year – Duchenne Muscular Dystrophy

Duchenne Muscular Dystrophy has invaded our lives. Our 4-year-old son, Alex, was diagnosed with this incurable, horrendous disease in February 2018. It’s been a VERY rocky, trying year. My wife

January 28, 2019 1 Comment

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Being the parent of a boy inflicted with Duchenne Muscular Dystrophy is heart-wrenching! It takes the wind out of your sails and offers an Evander Holyfield punch to the gut. However, you tend to appreciate more of what you’ve been given in this life — nothing as much as the precious, finite resource of time.